小麻雀阿诺
2023. g. dec. · Fondation Ipsen BookLab
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Arno is an adorable little sparrow full of energy. But one day, the wind told his parents that Arno had a disease that would take away the beautiful things he had acquired over the years.
However, despite life’s injustice, Arno's smile remains. His smile is an eternal memory of a premature flight.
ABOUT THE AUTHORS
Medical secretary, Sonia Goerger has been welcoming and meeting with numerous patients regarding genetics for many years. This interaction inspired her to create this series of books on "Children of Genetics".
The books within this collection address challenges these patients may face on a daily basis, in simple terms and with endearing characters.
The ARGAD Association (Association for Research in Genetics and Support for Families and Professionals of Dijon-Bourgogne) is a non-profit association under the 1901 law, created in September 2010. ARGAD engages in numerous activities: • Improving reception and care conditions for patients with rare diseases in Burgundy, within the Genetics Centre of Dijon CHU, • Raising awareness among health professionals in the Burgundy region, and amongst the general public regarding rare diseases, • Contributing to a better and improved training of health professionals involved in rare diseases, • And, supporting clinical and biological research activities in the field of genetic mutations associated with abnormalities in development and intellectual disabilities in Burgundy. To support the ARGAD Association and its’ mission: http://www.translad.org/
However, despite life’s injustice, Arno's smile remains. His smile is an eternal memory of a premature flight.
ABOUT THE AUTHORS
Medical secretary, Sonia Goerger has been welcoming and meeting with numerous patients regarding genetics for many years. This interaction inspired her to create this series of books on "Children of Genetics".
The books within this collection address challenges these patients may face on a daily basis, in simple terms and with endearing characters.
The ARGAD Association (Association for Research in Genetics and Support for Families and Professionals of Dijon-Bourgogne) is a non-profit association under the 1901 law, created in September 2010. ARGAD engages in numerous activities: • Improving reception and care conditions for patients with rare diseases in Burgundy, within the Genetics Centre of Dijon CHU, • Raising awareness among health professionals in the Burgundy region, and amongst the general public regarding rare diseases, • Contributing to a better and improved training of health professionals involved in rare diseases, • And, supporting clinical and biological research activities in the field of genetic mutations associated with abnormalities in development and intellectual disabilities in Burgundy. To support the ARGAD Association and its’ mission: http://www.translad.org/
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